Patients with advanced stage CF have two major choices when their condition worsens: use a breathing tube or obtain a lung transplant. Each choice is life changing and this tool was created to stimulate conversations with loved ones and doctors about options, preferences and ultimately a decision.
We built a custom Survival Estimates Calculator which can calculate estimated outcomes based on over 25 criteria over the next three-year period. Since each criteria impacts the others in a non-linear way simple mathematical equations were impossible to use. Instead we wrote a complex matrix tool that goes through each criteria generating the ultimate results.
While the calculator is the main feature the site also offers user story podcasts with transcripts, a knowledge library with detailed information, links to resources and legal forms if needed.
The system is web-based but often used with a doctor or nurse as a guide.